- Ablepharon Macrostomia Syndrome - A personal site with information and links about this disease.
- AMS Support Network (AMSSN) - Online community providing information and support for families affected by the rare condition Ablepharon Macrostomia Syndrome.
- NORD: Ablepharon Macrostomia Syndrome - A look at the alternate name, a general discussion and further resources.
- OMIM: National Center for Biotechnology Information - A clinical synopsis for Ablepharon-Macrostomia syndrome.