- Coffin-Lowry Syndrome Foundation - Non-profit organization and international support group. Available in English, French and Spanish.
- National Library of Medicine: Coffin-Lowry Syndrome (CLS) - A table showing the synonyms, a summary and major features.
- NINDS: Coffin Lowry Syndrome - Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
- NORD: Coffin Lowry Syndrome - General information about this syndrome, its alternative names and further resources.
