- NORD: Sturge Weber Syndrome - Offers a list of synonyms, a general discussion and further resources.
- Sturge-Weber Syndrome Center - Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility.
- Sturge-Weber Syndrome Community - Organization for individuals and families affected by SWS.
- The Sturge-Weber Foundation - A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
