- Family Village - Links to chat rooms, web sites and information about Von Hippel Lindau's disease.
- Radiology: Von Hippel Lindau Disease - Genetic, clinical and imaging features from the NIH.
- Von Hippel-Lindau Disease - Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Von Hippel-Lindau Family Alliance - Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]
