- Freeman-Sheldon Parent Support Group - Includes a members-only area with a bulletin board and pictures of afflicted children.
- Freeman-Sheldon Syndrome - Wikipedia - Detailed description of incidence, nosology, inheritance, and condition management.
- Geneva Foundation for Medical Education and Research - Several pictures of children with typical FSS characteristics.
- National Craniofacial Association - Summarizes the child's likely needs, and has links to other resources.
- Online Mendelian Inheritance in Man - Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.
