- Intracranial Hypertension Research Foundation
- Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research news, and links to related sites.
- Benign Intracranial Hypertension - A UK based site relaying a personal experience, with symptoms, possible causes, and diagnosis. Message boards are included to connect with others living with BIH.
- BIH - This site provides a listing of symptoms associated with Benign Intracranial Hypertension. View the steps to diagnosis, and visit the definitions page for explanations to the most common terms associated with BIH. A message board is provided to connect with others.
- care2 BIH group - A support and educational group for those diagnosed with B.I.H, their families and friends; also for compassionate souls who wish to learn more and help others.
- Dutch PTC Support Group - Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey results.
- IIH Support - A forum offering support, advice and help for people with idiopathic intracranial hypertension, also known as BIH (Benign Intracranial Hypertension), and PTC (pseudotumor cerebri).
- IIH UK - Organization aims to campaign for research and to promote education about idiopathic intracranial hypertensio. Includes a number of information leaflets about IIH, its symptoms, and related subjects.
- Living with Pseudotumor Cerebri - Includes an online book called "The PTC Primer," an explanation of pseudotumor cerebri, newsletters, sign-up for a patient database, and links to related sites and support groups.
- Pseudotumor Cerebri Community - Provides support for patients, friends and families. Includes information on symptoms, diagnosis, and treatment, as well as message boards and an open chat room.
- Pseudotumor Cerebri Informational Homepage - The Pseudotumor Cerebri Informational Homepage offers an explanation of Pseudotumor Cerebri with suggestions on improving headache pain, along with possible diet modifications. Links for PTC support are also included.
- Team IIH - Information on Idiopathic Intracranial Hypertension (IIH, also known as Pseudotumor Cerebri), that includes pages written in Swedish, English, Italian, and German.
- Yahoo! Groups : PTC - This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate.
- Yahoo! Groups: PTC-Support-Group - This is an email support group for people who have Pseudotumor Cerebri. A chat room is also provided for additional support.
Last update: 2008-11-30 21:51:40
