- Becker Muscular Dystrophy Information Exchange - Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
- DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
- DMD Pioneers - Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
- Duchenne/Becker Muscular Dystrophy - Includes key facts and animated slide shows of causes, diagnosis and treatment.
- FSH-MD Support Group - Provides support for those with Facio Scapulo Humeral and their carers.
- General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.
- A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
- Living For Today, Preparing For Tomorrow - Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
- MDA Ride For Life - Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
- Muscular Dystrophy - Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
- Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
- National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
- NINDS Muscular Dystrophy Information Page - Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Media publications
- Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy - Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians. (Published 1997.12.01)
