- Elizabeth's Page - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
- Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.
- FightSMA - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
- GeneClinics SMA Information Page - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
- Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
- Jennifer Trust for Spinal Muscular Atrophy - Providing support, information and research news for UK families.
- Our SMA Angels - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
- SMA Support Inc. - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- SMA2 Ian Paul - I am two years old and I have SMA2.
- Spinal Muscular Atrophy Foundation - Information on SMA, and the latest updates in research, treatment and funding.
- The Sean W. Venezia Foundation - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
- Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
- Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
- Twins with SMA - Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
- Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
