- British Columbia Neurofibromatosis Foundation - BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
- Just Ask! - Presents the personal aspects of living with the disease, including news, photographs and videos.
- Neurofibromatosis - Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Neurofibromatosis Association of Australia Inc. - Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
- Neurofibromatosis Clinic at M. D. Anderson Cancer Center - Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
- Neurofibromatosis Clinics Association, Inc. - A non-profit organization for people with NF and their families.
- Neurofibromatosis, Inc. - Support and information for those with Neurofibromatosis.
- Neurofibromatosis(Von Recklinghausen's disease) - A review of the most important aspects on physical examination, classification and treatment, for medical students.
- NF2Crew - On-line discussion group for people with neurofibromatosis 2.
- Race for NF Research - Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.
- Texas Neurofibromatosis Foundation - Includes a list of events, fundraisers and outreach programs, as well as background information on the disease, and links to related resources.
- The Children's Tumor Foundation - Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
- The National Neurofibromatosis Foundation (NNFF) - Information sponsored by the National Neurofibromatosis Foundation for people with NF, and links.
- The Neurofibromatosis Association UK - Information about the UK Association, including family support, membership details and local group contacts.
- Understanding Neurofibromatosis - This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.
Last update: 2008-11-30 21:51:40
