- Cornea and External Diseases - Cystinosis - Features photographs of an affected eye, information on clinical features and treatment.
- Cystinosis Central - Information about this disorder, conferences, data for physicians, updates and links.
- Cystinosis Clinical Resources - Portal features annotated links for health professionals.
- Cystinosis Foundation - Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
- Cystinosis Research Foundation - Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
- Cystinosis Research Network - Information about the organization and their mission. Includes database about the disease as well as support groups, research and links to other resources.
- The Cystinosis Foundation UK - Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
Media publications
- EyeRounds.org: Cystinosis - Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment. (Published 2005.02.21)
