- Anencephaly Awareness - Possible causes and information for future prevention of this disorder.
- Arkansas Center for Birth Defects Research and Prevention - This organization works to reduce the prevalence of birth defects and their economic, social, and psychological impact in Arkansas and the United States.
- BDF Newlife - UK charity that provides information, support and nurse advice for all birth defects.
- Birth Defect Research for Children - Birth Defect Research for Children (BDRC)provides birth defect information, parent networking, resource referral and news updates on birth defect prevention. BDRC sponsors the National Birth Defect Registry, a project that collects data for birth defect research.
- California Fetal Alcohol Spectrum Organization, CalFAS.org - Working together to eliminate the disability FASD, Fetal Alcohol Spectrum Disorder by offering information, support and advocates. FASD includes FAS, ARND, ARBD and Static Encephalopathy caused by prenatal alcohol exposure.
- How Folate Can Help Prevent Birth Defects - Information from the FDA on the importance of folic acid supplementation before pregnancy.
- Kentucky Folic Acid Partnership - Kentucky's campaign to increase awareness of the B vitamin folic acid for birth defects prevention and to address other perinatal health issues, such as premature births.
- Kiss It Make It Better: Vitamin A and Birth Defects - Includes information on possible risks pre-formed vitamin A for a pregnant woman.
- March of Dimes - Resources for reducing infant morality and birth defects. Offers a health library, research, programs and a donation form.
- National Birth Defects Prevention Network - Information about the organization, news, publications and upcoming meetings. Links to state monitoring programs, national as well as international. Instructions for joining the email list.
- Newborn Screening.Com - Regularly updated information and news pertaining to testing and screening. Explanation as to what it is, condition profiles, lab profiles and a discussion forum.
- Save Babies Through Screening Foundation, Inc. - A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening.
- Texas Office for Prevention of Developmental Disabilities - Attempting to minimize the economic and human losses in Texas caused by preventable disabilities. Includes details of task forces, services and resources.
- The Pregnancy Risk Network - Offers free telephone information about possible effects that medications, alcohol, illness, on children.
Media publications
- Research Explores Environmental Causes of Birth Defects - Article from the Medical College of Wisconsin explains how in most cases, the precise cause of birth defects is unknown. Describes research being conducted at the College. (Published 2006.01.11)
- The primary prevention of birth defects: Multivitamins or folic acid? - Study of large clinical trials that found multivitamins containing folic acid are more effective at preventing neural tube defects than high dose folic acid supplements. (Published 2004.03.20)
