- AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
- Beneath the Surface - Offers support and understanding to individuals of facial difference.
- Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
- Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
- Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
- Children's Craniofacial Association - Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
- FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
- Foundation for Faces of Children - Expert information for families and health care professionals about craniofacial conditions.
- Johns Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
- Let's Face It USA - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
- Moebius Syndrome - Moebius Syndrome support, information and resource site.
- Sincere Meditations - Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
- Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research.
- The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists.
- The DRM WebWatcher: Facial Differences - A Disability Resources monthly guide to online resources about craniofacial differences.
- The Personal Side of Craniofacial Differences - Personal accounts of living with craniofacial conditions, and related webrings.
- XP Support Group - UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
